Jenny's Diary

  • Jenny’s Diary, a resource to support conversations about dementia with people who have a learning (intellectual) disability

    Developed by Karen Watchman, University of the West of Scotland, Irene Tuffrey-Wijne, St Georges, University of London & Kingston University, Sam Quinn, University of the West of Scotland

    About Jenny’s Diary

    Jenny’s Diary is a free booklet and a set of postcards aimed at supporting conversations about dementia with people who have a learning (intellectual) disability. Conversations about dementia are never easy. All dementia strategies in the UK state that everyone is entitled to know of their diagnosis, not only as a human rights issue but as part of developing appropriate and individualised post-diagnostic support. Currently there is limited guidance on how to explain dementia to an individual with a learning disability. Such reluctance to share information is not new, particularly in relation to breaking bad news about an illness. There is typically a fear of what will be understood, what words to use, and how to cope with the response. Jenny’s Diary takes a three-step approach to address this:

    • Part 1 opens dialogue about why Jenny is behaving differently, and how she can be supported to live as well as possible with dementia.
    • Part 2 suggests how to have a conversation with Jenny about her diagnosis of dementia.
    • Part 3 contains guidance to talk about dementia with George, Jenny’s partner.

    Jenny's Diary has been developed at the skilled dementia practice level of the Promoting Excellence education framework in Scotland.

  • This work is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International Licence. This means that anyone can use or download the content and share it, but the authors and the resource must be credited. The words and the photographs cannot be changed by anyone else.