Palliare Project

  • A very successful end of project conference was held in Porto during September 2016. You can see the presentations which showcased the project outputs via the Conference Presentations Videos

    The European Best Practice Statement on advanced dementia care is now available to download and use in practice.The Statement is intended for professionals, to stimulate learning, provide a basis for improving care directly and indirectly and involving the person, their family and friends, enhance partnerships and stimulate ideas for improvement. 

    The Dementia Palliare Community of Practice welcomes everyone interested in advanced dementia care. Join the Community of Practice to learn about and share practice solutions.

    The project brochure outlining the key outputs of the project and visions for the virtual Dementia Academy can be downloaded here.

    Prof Wilson Abreu has been invited by Portuguese national TV to be a panel member discussing advanced dementia care and the Dementia Palliare project at an international meeting focused on the mental health of older adults to be held in Portugal on 27-28 January 2017.

    Our project was graded by the EU assessors as ‘Very Good’ which is the highest outcome that can be achieved. Many thanks to all the partner teams for their dedication and continued efforts to convey the evidence and educational resources the project developed.

  • Dr Rhoda Macrae gives an update on Dementia Palliare


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  • The Palliare project, funded by the EU Erasmus + programme aims to develop interprofessional experiential learning (IPE) solutions that will equip the qualified dementia workforce to champion evidence informed improvements to advanced dementia care and family caring.

    This two year project began in September 2014 and is led by Professor Debbie Tolson, Alzheimer Scotland Professor of Dementia and Director of the Alzheimer Centre for Policy and Practice at UWS 

    Alzheimer Scotland Centre for Policy and Practice
    Debbie Tolson

     

  • The term palliative care is derived from the Latin verb ‘palliare’ which means to cloak. Palliative care aims to relieve and prevent pain and suffering at all stages of a condition, in all areas of someone’s life. Dementia is a progressive condition, with an extended, intensive palliative care phase. 

    Workforce training, commitment to good quality continuing care and services for people living with dementia are World Health Organisation priorities. In 2013, the G8 Dementia Summit in London encouraged countries to share and build solutions across the continuum of dementia care. Preliminary explorations and discussions as part of this project reveal variations in policy and practice within and across European Union member states. There are also challenges facing professionals about how to optimise the contributions they make to the improvement of practice and the influence of policy around dementia care.

    This project aims to support the dementia workforce to champion improvements to extended palliative dementia care in their workplace. Outputs will include the development of a virtual Community of Practice and interprofessional education on advanced dementia care.

    The overall aim of the project is to create a range of social participatory and practice based learning resources. These resources will be designed to equip qualified practitioners from all health and social care disciplines to champion improvements to extended palliative dementia care in their workplace through membership of a facilitated virtual international community of practice.

    There are a number of specific outputs to be delivered. These are:

    1. To review the literature on the experience of advanced dementia.
    2. To undertake a comparative analysis of current national dementia action plans and related health and social care policies within partner countries.
    3. To exemplify the experience of advanced dementia care within a range of typical care settings in partner countries through in-depth case studies.
    4. To prepare a European advanced dementia care best practice statement.
    5. To undertake an educational gap analysis of the qualified dementia workforce to add European value to the modules being developed.
    6. To undertake a pedagogical review of experiential learning including communities of practice with a particular focus on e-learning and virtual communities of practice.
    7. To construct an online community of practice environment.
    8. To develop four experiential interprofessional modules, one will be a Community of Practice and best practice methodology and three will be on advanced dementia.
    9. To produce a manual for facilitators and users of the experiential modules.
    10. To train experiential learning facilitators from partner organisations.
    11. To prepare a sustainability plan that will build on the project outputs and harness the facilitation capabilities of the trained faculty from partner and stakeholder countries and develop a viable business model for a virtual European Dementia Academy.
    12. To organise and run a consensus conference ‘understanding best practice: advanced dementia care’ in collaboration with partners and stakeholders
    13. To organise and run a virtual tour and virtual open door event to provide stakeholders with a taster experience of the experiential learning environment.
    14. To organise and run an end of project conference to share the key intellectual outputs, showcase the new modules and share the ambition for the virtual European Dementia Academy.

     

    UWS is leading this new dementia partnership that extends across Northern, Southern, Central and Eastern Europe with partners from the Czech Republic, Finland, Sweden, Portugal, Spain and Slovenia.

    The partners have been selected to include a range of dementia experts from a range of disciplines with international repute and educators with a track record of innovative experiential learning methods.

    Scotland - The UWS team is led by Professor Debbie Tolson and includes Dr Rhoda MacRae, Margaret Brown, Professor Graham Jackson, Dr Barbara Sharp and Anna Waugh

    Slovenia - The Faculty of Healthcare Jesenice, Slovenia is led by Professor Brigita Skela Slavic and includes Dr Simona Hvalic Touzery, Jozica Ramsak Pajk and Sasa Mlakar

    Sweden - Linnaeus University, the Department of Health and Caring Sciences, Sweden is led by Professor Elizabeth
    Hanson and Dr Amanda Hellström  

    Finland - Turku University of Applied Sciences, Finland is led by Kimmo Polvivaara and the Finnish team includes Pirkko Routasalo, Anne Merta, Mia Vuopio and Outi Reunauen

    Portugal - Portugal is led by Professor Dr Wilson de Abreu and includes Prof Dr Teresa Rodrigues

    Spain – Universidad De Alicante, Spain is led by Professor Dr Manuel Lillo Crespo and includes ProfessorDr Maria Josefa Cabanero Martinez and Miriam Sanchez-SanSegundo

    Czech Republic – Univerzita Karlova v Praze, Czech Republic is led by Professor Iva Holmerova and includes Radka Reprkova, Jana Kasparkova and Klara Buriskova

     logo1 alacant esepLinnaeus UWS Turun Faculty of health

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    A number of networks and organisations have demonstrated support and interest in the Palliare project. Our affiliated organisations include: Alzheimer Europe Alzheimer Europe and Alzheimer Scotland  Alz scot

    The literature review on the experience of advanced dementia is now complete. The executive summary in a variety of languages can be found here.
    English 
    Swedish 
    Portuguese 
    Finnish 
    Czech 
    Spanish 
    Slovenian


    A comparative analysis of current national dementia action plans and related health and social care policies within seven European countries is now complete. The executive summary in a variety of languages can be found here
    Finnish 
    Portuguese 
    Swedish 
    English 
    Spanish 
    Czech 
    Slovenian

    Case studies that exemplify the experience of advanced dementia care within a range of typical care settings in seven European countries are now complete. The executive summary in a variety of languages can be found here
    English 
    Portuguese 
    Slovenian 
    Czech 
    Swedish 
    Spanish
    Finnish

    A European Best Practice Statement on advanced dementia care as been drafted in light of the best available evidence.
    Best Practice Statement July 2015

    The results from the educational gap analysis are now complete. The executive summary can be found here. 
    English
    Finnish 
    Portuguese
    Swedish
    Czech 
    Spain 
    Slovene

    The executive summaries of the experiential learning framework can be found here.
    English
    Portuguese
    Slovene 
    Czech