Project Title: Interprofessional experiential learning (IPE) solutions: equipping the qualified dementia workforce to champion evidence informed improvement to advanced dementia care and family caring (Palliare).
Funders: Erasmus+ 2014 Key Action 2 (KA2), Strategic Partnerships
Project Team: Professor Debbie Tolson 1, Professor Iva Holmerova2 ,Dr Rhoda Macrae1, Anna Waugh1 Dr Simona Hvalič- Touzery3, Professor Wilson de Abreu4, Professor Manuel Lillo Crespo5 Anne Merta6, Professor Elizabeth Hanson7
- Alzheimer Scotland Centre for Policy and Practice. University of the West of Scotland UK
- Centre of Expertise in Longevity and long Term Care, Charles University, Prague
- Angela Boškin Faculty of Health Care, Jesenice, Slovenia
- Porto School of Nursing, Porto, Portugal
- University of Alicante, Spain
- Turku University of Applied Sciences Ltd TUAS, Finland
- Swedish Family Care Competence Centre, Linnaeus University, Sweden
Synopsis: The Palliare Project was completed between 2014-2017 by a partnership of seven European countries (Czech Republic, Finland, Portugal, Scotland, Slovenia, Spain and Sweden). The aim of the dementia Palliare project was to create an inspirational experiential interprofessional learning solution to equip the European qualified dementia workforce to lead and champion practice reform. This required new knowledge to generate an experienced based understanding of advanced dementia and best practice for care delivered in partnership with family carers, and to use this knowledge to create state of the art advanced dementia education. Palliare, means to cloak in support, the term Dementia Palliare was chosen as a new concept to describe dementia specific palliation. Building the evidence for Dementia Palliare and Palliare education involved 11 work streams and included the following research activities:-
- Literature Review
- Policy Analysis
- In-depth case studies
- Educational Gap Analysis
- Experiential learning pedagogical review
Hanson, E., Hellstrom, A., Sandvide, A., Jackson, GA., Macrae, R., Waugh, A. Abreu, W. & Tolson, D. (2016). The extended palliative phase of dementia – an integrative literature review. Dementia DOI: 10:1177/1471301216659797.
Tolson, D., Fleming, A., Hanson, E., Abreu, W., Lillo Crespo, M., Macrae, R., Jackson, G., Hvalic-Touzery, Routasola, P. & Holmerova, I. (2016) Achieving Prudent Dementia Care (Palliare): An International Policy and Practice Imperative. International Journal of Integrated Care, 16 (4), 18, 1–11, DOI: http://dx.doi.org/10.5334/ijic.2497.
Lilo-Crespo, M., Riquelme Golindo, J., Macrae, R., Abreu, W., Hanson, E., Holmerova, I., Cabaneor, M,J., Ferrer, R., Tolson, D. (2018) Experiences fo advanced dementia care in seven European countries: implications for educating the workforce. Global Health Action 11(1):1478686.
Hvalič-Touzery, S., BrigitaSkela-Savič, B., Macrae, R., Jack-Waugh, A., Tolson, D., Hellström, A., de Abreu, W., Pesjak, K. (2018) The provision of accredited higher education on dementia in six European countries: An exploratory study. Nurse Education Today 60, 161-169 https://doi.org/10.1016/j.nedt.2017.10.010
Tolson D (2020) Transforming advanced dementia: the Palliare Best Practice Statement, an interprofessional learning framework and tool for improvement .Nursing Standard. 35, 10, 56-59. doi: 10.7748/ns.35.10.56.s33.
Project Website: https://www.uws.ac.uk/research/research-areas/health/dementia-palliare/